Today was Jesse's outpatient appt. She received her weekly IVIG med, and nothing else (that's a first). We met with Dr. Boklan and went over her blood reports. All her electrolytes look good, and she held on to her blood and made a few platelets. We will have to schedule and appt with the cardiac specialist, as her last echo shows her heart function has decreased (not good). They may have to change her heart med, as she is already at the max dose.
Dr. Boklan also told Jesse that if she would drink 4 bottles of liquid a day, she will be close to getting her broviac taken out. Getting Jesse to drink that much will not be so easy. You can lead the child to water, but you cant make her drink :)
Wednesday we will be going to the Diamond Back baseball game. Thank to PCH for some great seats!!
Have a great weekend,