Wednesday, August 26, 2009

Once a week

Hello,
We are in outpatient today. Dr Boklan has begun to schedule out appointments just once a week. Her medications are beginning to be reduced. The HHV6 virus med will go to once a day. It is suppressing her bone marrow, so she is not able to get her white blood cell count up for immunity. Hopefully this will help, and not let the virus take over and become a bigger problem. They are taking her off one heart med. We will just watch her blood pressure closely this week. Her night hydration down to 1000 ml instead of 1800 ml. If Jesse continues to drink, the following week she will have no hydration at night. If she remains hydrated through the day, the following week her Broviac will come out!!! Jesse has been waiting for this day for a very long time. She will be able to swim, shower and take a bath. If she needs any IV blood or other med, they will do an arm IV. Most importantly, it is still looking good for her Make a Wish vacation to Hawaii in October. Her anti fungal med will go back to pill form, eliminating the last IV med.
Jesse still has nausea problems in the morning, and we found out today, that the hospital cafeteria causes nausea and anxiety. Appetite remains a struggle, but it seems to be mind over matter. We are excited with Jesse's progress, and it seems she is getting some of her spunk back. Please continue to pray for a complete recovery and a huge appetite.
Much Love, Team Catron

8 comments:

Lisa said...

All such great news! Climbing out and getting better! Must seem like forever for you Jesse, but you are getting there, and with Hawaii shining ahead of you, you'll work hard at drinking and eating! I can just imagine how that first hot shower will feel when you have the broviac out!

And I guess you are proving that hospital food isn't great!

love and prayers from the Suazos!

Anonymous said...

Wow Jess, what great news! Boy, I bet the day you get that broviac out can't come soon enough. I'm so happy for you and all the progress you've made. I know what a long road to recovery this has been for you and I'm just so thrilled to see you at the end of it. Congrats girlie, you're just about there!!!

Ronda
PS-you're not the only one who gets nauseous with the PCH cafeteria food :P

DArla said...

So good to hear that things are getting better even though to you they may not seem like enough. I just got back from California (quick biz trip). Otherwise there is not much news. There actually are a couple of good things in the cafeteria... but you have to look hard to find them... that is hard to do when gaggin! :O(

Take care with Love

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