What a long week we had. We needed to go to outpatient Mon-Wed-Friday this week, 6-8 hours each visit, so pretty much the entire day. Jesse needed Blood, platelets, IVIG, Phosphorus, potassium and a few other grocery items. Jesse's ANC is rising rapidly, she is at 1350 already. She is beginning to eat more, and is on the foscarnet for the HHV6 virus just once a day now. The not so great news: Jesse's heart is getting worse. She is now short of breath with just a few steps, and she has edema in her ankles and feet. Her Left ventricle squeeze has decreased another 21%. We will be going in Monday for another echo for her heart. They have gotten her high blood pressure under control, and maybe that will help her heart function?
Thank you for your continued Love, Prayers and Support
Have a blessed weekend,