Yesterday they played musical beds on the second floor. Our room was so hot with the hepafilter in the room. We were moved to a corner room that is nice and cool, and much bigger. Our roommate is so sweet. He is 2 1/2 with AML(same as Jesse), on his 3rd round . He will need to go 6 rounds because he also has down syndrome. Jesse went from gloomy to perking right up once we got in the room and she watched him play and squeal.
We have reduced Jesse's pain pump in 1/2, trying to get rid of the nausea. I hope she has a better day today. Still no ANC, or neutrophils (majority of her immune system) so, another week at 0 they are expecting. She still has no mouth sores or any other problems at this point. Her hemoglobin and platelets continue to drop each day. Her hemoglobin is high enough today for no transfusion, but her platelets are just 7, so a transfusion of platelets she will be getting this afternoon.
Have a great day, the weekend is right around the corner!!
Love, Team Catron