Good Morning Everyone,
Well last night was a total bummer. I can't tell you how many times we got up so that she could rush to the bathroom. When she went the first time, she came back to bed in so much pain. Usually she just curls up to help control her liver pain a little bit but that did nothing this time. She cried and cried and there was nothing I could do. Hugging her helped her none, she told me I was just squishing her....figures. What happened to the saying that hugs make you feel better?
I can't explain how much of a hassle it is to make sure that Jesse actually makes it to the bathroom. I mean she firsts wakes me up, which is a total startle because you go into like panic mode trying to figure out what she needs. Then it's up to me to unplug her from the wall, unattach her from her heart rate and oxygen level monitor and push her pole in front of her and into the bathroom. There was so many times when she almost didn't make it.
Since I've been here she hasn't thrown up once. I guess it's just my awesome presence that just calms all of that down ;) The only hard thing that we have to go through everyday is when she has to swallow her pills. I think it takes almost a half an hour for her to take five of them. Each time causes her to wince, curl up into a ball and cry. I don't see why there isn't an IV form for those medications when it comes to patients like her.
This morning has been sort of funny. She has started to talk while being half asleep and awake. While I'm writing this she was talking about all of the areas that hurts her and it was so clear. She then opened her eyes and of course I happened to be looking at her when she looked at me and shes all, "What are you staring at?" All I did was raise my eyebrow and she told me that she was talking to McKenzie, but she soon realized the she was nowhere in the room.
She has become pretty straight forward with some of the nurses. This morning she told one of them when she was getting her pills that she wants ice cold water with a straw. She also told her to bring a straw whenever she wanted water so that she doesn't have to keep reminding them. I'm glad the nurse laughed because Jesse sounded pretty rude.
With her ANC going up, it's only a matter of time before she can come home. I just wish that her liver pain was going away. The only thing that is thankfully healing is her mouth. Hopefully by the end of this week she will be feeling more normal. We definitely don't want her coming home when she still feels weak and in pain. That would be no bueno.
Well this day is going to contain a lot of TV and movie watching. Maybe a little bit of napping for the both of us. Thank you Kirkhams for the entertainment that you provide for us, it's very much needed and appreciated.
Thank you all for praying, God is truly starting to heal her.