Well, our last day at home has finally arrived. We try to prepare going back to the small room, with all the beeping and busy noise. I don't think anything can really prepare a person for what lies ahead. We decided last night after Jesse being hooked up to the TPN, to disconnect it. Within an hour she was restless, moving her legs all the time, and vomiting. I thought, it has to be all the sugar in the TPN. Wow, Jesse got a great nights sleep, and did not vomit even one time. I wish we would have done this 12 days ago. It is hard to believe that the one thing that gives her calories, keeps her from eating. Lesson learned for next round. We did finally get the first round medical bill, hold on to your seat, and hope you are sitting down. $780,000 which is about $17,000 per day. You would think we had a room at the Hilton :) Round two was shorter, so that bill was down to $560,000 for the second round. The total comes to about $3 million. We hope our Insurance company is a great negotiator as our Lifetime cap for Jesse is $1 million.
Jesse has requested Starbucks again, so we will take her later on today. Hmmm I wonder if they deliver to the hospital???
Thank you everyone for your prayers and thoughts for Jesse and our family. We pray for a speedy third round with no complications and lots of calories for Jesse.