Good Morning Prayer Warriors,
This adventure reminds me of a roller coaster. Last evening Jesse was sitting up and feeling very little pain from her spinal tap. We decided to cut the rest of her hair since it was coming out anyway. I borrowed a pair of scissors and proceeded to be a blind "Edward Scissors Hands" (it's a movie) but my creation wasn't exactly a work of art. Mom will bring my shears and fix. It felt like we were riding a fast roller coaster down a steep straight decline. The kind you put your hands up a scream (cause it's fun). That was last evening for us. The twinkle was back in Jesse's eye and her killer smile that stops traffic. Her temp was normal! Her ANC number is 8! She hasn't thrown up for 20 hours! And the best miracle was she went potty and didn't poop! We were on the best ride ever! My hands were raised high and I was saying Weeeeee thank you Lord.
Her temp did get up to 104.6 last night (as the roller coaster headed up the hill) but with an ice bag it has come down a little. There was no accidents in bed and, like I said before, she hasn't thrown up.
Today's menu has a Cat Scan for the main coarse. I am sure there will be a side of antibiotics and what ever she eats through a tube for dessert. If she feels like it I will ask for broth and crackers (for a special treat) on our way to a cheese burger in the future.
I want to thank everyone for all of their support. A special thanks goes out today to all of my A&P family for all they have done for me and my family. There is people stepping up and helping with my responsibilities with warranty items and getting my next job ready to start. My good friend Joe Baranski even cleaned my pool (I don't know how he knew). What company do you know of that would allow you to stay in the Hospital with your child for 3 weeks and pay you for it. A&P is awesome!! I am doing as much preparation as I can from here (with my plans rolled out on my bed) and following things through email but I am humbled by their heart of support.
We all called it right. She is beautiful bald. Her inner beauty just shines. Besides...she's got a great looking mellon. We talked last night about (and this might be hard for some to understand) what a privilege it is that God would choose Jesse to be a beacon or light that would effect so many. That God's blessing would pour out to so many through her trials. That maybe someone would find there way to the Lord through this light and ministry that has started. Parents hugging their kids more and telling them how much they are loved might be part of the blessing coming from all of this. People praying for Jesse that might pray for others that God lays on their heart (that they might not of) could be part of this plan. We are in Gods hands in all of this. He receives all the Glory and, again it might sound weird to some but, he gets my thanks for using my baby to further his ministry.
I Love my little girl with all that I am.